Stephen, Rob and Doddy - PLEASE SIGN PETITION IN POST #3

Here is a link for those that haven’t seen it

Latest interview: https://www.bbc.co.uk/programmes/p09jfdtg

And last year's interview: https://www.bbc.co.uk/programmes/p08304s6

 

And here is the petition that I think is mentioned in passing when talking about funding

https://petition.parliament.uk/petitions/564582

 

I am hoping the legacy of COVID is the huge capacity for research that has been set up is used on
Other terrible diseases such as this one

 

I watched this on the news this morning. Heartbreaking to see such active men reduced to this.
My wife says i am hard when it comes to all things emotional , but this brought a tear to my eyes.
An illness , we need to find a cure or some sort of treatment for as soon as possible.
God bless all three of them.

 

Great sentiments but will never happen am afraid

 

Pleased to see the 3 of them looking as well as they do. My sons best mates mum got the same diagnosis 18 months ago and she’s in a far worse condition. The boys are 11 - makes you re-evaluate what’s important.

 

https://petition.parliament.uk/petitions/564582

Come guys & gals get this petition signed.

 

I was just typing the same.
Watch the clip.It could be any one of us.
It’s the least we can do.Takes seconds and could make a difference.

HE’S ONE OF US.

 

A really tough watch.

Imagine living with this dreadful illness? Gives real context to my own personal experiences.

 

Im not sure that's true, covid has fundamentally changed clinical research. There's a number of papers in the Lancet you can read about it but in regards to ALS or MND there are new gene therapies now being developed that use the same technology as the Pfizer and Moderna mRNA vaccines. Obviously these two vaccines were the first time that mRNA has been cleared for use in humans.

They may not cure the disease completely, but the tests they have done so far show that the mRNA therapy is able to reduce significantly the accumulation of mutated cells which leads to degradation before it has a chance to aggregate and multiply. Therefore, if you can catch it early enough the treatment could significantly slow down the progress of the disease.

Hopefully now the mRNA technology has been fast tracked via the Pfizer and Moderna vaccines, they can move to human trials.

 

i think that is the link to the one that was broadcast just over a year ago. This is the link to the latest one. Very sad how they have deteriorated in 12 months. Must admit Darbs brought a tear to my eye too.
https://www.bbc.co.uk/programmes/p09jfdtg

 

Done.

 

Signed

 

Signed

 

Done, hopefully everyone on here will do the same and sign up, That was a hard watch.

 

In case people aren’t aware of Amazon smile it allows you to donate a portion of all your purchases to a chosen charity and the Darby Rimmer MND charity is on there.
So if you’ve not got it set up-it take 5mins and you’re supporting a cause close to bantam hearts

 

Evil, evil horrible disease.

It’s extremely painful to watch